ANGELS WITH MISSING PIECES

Online resources

Children's Mercy Hospital Super Q Express 22q Clinic- SuperQexpress@cmh.edu

Cincinnati Children's animation of congenital heart defects- 
http://cincinnatichildrensblog.org/rare-and-complex-conditions/heart-conditions/animated-videos-illustrate-congenital-heart-defects/#.VaCssflVikr

Practical Guidelines for Managing Patients with 22q11.2 Deletion Syndrome- 
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3197829/


International 22q11.2 Deletion Syndrome Foundation, Inc- www.22q.org- has updated growth charts for 22q children under resources and much more information


Families Advocating for Chromosomal Education: Chromosome 22- www.face22.org/resources.html








 

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  • Home
  • A Little About Us
  • What is 22q11.2 Deletion Syndrome?
  • Care Packages
  • 22q at the Zoo
  • Amp22q Shop Page
  • Ways to Give
  • Photos/ Videos
  • Share Your Story
  • Online Resources
  • Articles